Stunned Speechless and Furious

I have picked up this article through Martin posting about it on the Forum and feel strongly about it also.

In the East Anglian Daily Times, Suffolk UK, this week there is an article entitled “Hepatitis C ‘Time Bomb’ Shock”. An expert in infectious diseases warns there are an estimated 2,700 undetected carriers of Hepatitis C in Suffolk that could have a potentially fatal “ticking time bomb” in their liver. This equates to every GP having possibly three undetected carriers on their list.

Not a particularly contentious piece of information to those who have awareness about Hepatitis C – these figures reflect the Department of Health statistics. And represent the local view of the national picture.

The article goes on to say:

However, Dr Gareth Richards, president of the Suffolk division of the British Medical Association, which represents GPs, said finding three carriers from their lists would be like searching for a needle in a haystack.

He added: “The only treatment we have for Hepatitis C is expensive and not terribly effective. When the NHS as a whole in Suffolk is overspent you have to ask ‘do you want to find people who are going to cost £10-15,000 to treat year after year?’

“There are a lot of priorities. If the Government earmarked money for Hepatitis C we would have to look at it. I think probably there are more important things. Of course, it is very important if you have got Hepatitis C but if you’re looking at the amount of money, would you be better off spending it on health education, needle exchanges for drug addicts so they are less likely to pass it around and safe sex messages?

“We still get a lot of people dying from heart disease, which is preventable, and poorly managed diabetes. They cost money to treat but have greater returns in terms of lives saved then Hepatitis C.”

So, Dr Richards says, why bother identifying people who need treatment – especially when it costs money to treat them and after all there are greater returns in treating people with more important illnesses like heart disease and diabetes in terms of lives saved. Ignore anyone who has the illness currently and spend some money educating drug addicts and the problem will be addressed.

And what does he mean - it might be important to me if I have Hepatitis C but the NHS would be better off spending the money on education, needle exchanges and safe sex messages. I shouldn’t have money spent on my treatment for an illness but be pleased to see it spent on that shopping list? If Dr thinks that strategy is a wise way to address the ‘time bomb’ God help us. He needs to be educated for a start on the actual risk factors not the hype.

I am stunned and speechless at this outrageous and ignorant stance by a doctor commenting about people’s health issues. And a doctor in some position of power as a representative of the doctors professional association setting the tone for other doctors in his local region.

Is this really how doctors talk and think? Is this how our Health Service looks after the people who pay for the Health Service?

Or is this man so used to playing God he feels quite comfortable sitting in judgement about which illnesses are deserving and which aren’t. He obviously is not in touch with his patronising arrogance or his ignorance about the risk factors of the HepC ‘time bomb’.

I am so furious I don’t think I can say anymore at this point.

3 Responses to “Stunned Speechless and Furious”

  1. Martin Bolton Says:

    Hi Ron,
    Did you pick up on the significance of this bit:-

    He added: “The only treatment we have for Hepatitis C is expensive and not terribly effective. When the NHS as a whole in Suffolk is overspent you have to ask ‘do you want to find people who are going to cost £10-15,000 to treat year after year?’

    Treating year after year? He doesn’t realise that the vast majority of cases are cured in either 24 or 48 weeks, and are certainly not ‘treated year after year’. He cannot have read the NICE or BMA guidelines. What is the clinical director of a PCT doing commenting supposedly with the authority of the BMA on an issue about which he know so little about? Does this man have decision making authority?

    You are right, it defies further comment.

  2. tom pryce Says:

    hi ron. i’ve just logged onto your blog after a very bleary night on the town, and as i read the article i’m stunned and dismayed by this medico and his comments. what the f…. is going on in england? doctors with little or no sympathy or knowledge or understanding of HCV+ people or what they may be going through!
    flabberf…inggasted!
    this issue is not going to go away quickly, not when you have a press with no ability to edit out obviously inane commentary.
    this sort of thing makes me so angry! it belittles. it’s …….i don’t know……so disspiriting.
    viral loads are dropping as a result of tx, and the world continues to become a better place for some people because of them,good things are starting to happen in regards funding and recognition for HCV,but then you have statements like this, or the throwaway line in “Bewitched” about HCV(which has caused a bit of a stir here in oz), and whatever gets built up gets torn down.
    maintain the rage everybody. the paradigm MUST SHIFT!

  3. maria miller Says:

    Hello, I just read the article about the approach to time bomb hep c.

    It is very poorly, how NHS is tackling this disease. I am from the Czech Republic, diagnosed last year by the doctors in my country after 7 years going back to my GP with typical symptoms of any hepatitis, he failed.

    In my country the doctor told me I should be in the hospital with the results of my blood test, in England after one year I am still waiting for the liver biopsy and my consultant gave me the date for the next appoitment for next year in May!!

    Czech doctors are stunned and urge me to go back for futher necessary test for relating diseases, immune system work, thyiroid test, pancreas test. - none of them have been offered to me in UK.
    I wish to go back for treatment, but I have family here and it is quite difficult as the treatment is so long.
    If I would stay last year there, I would be now after the treatment.

    We have walk in centres to be diagnosed free and anonymously, but everybody has to go for treatment if he/she is positive in three months.
    We are talking about the country with still weak economy, but very good health care, which is based on the same structure as in England - people are paying for it in taxes.

    The government and doctors in UK are ignorants, they do not give back to people what they deserve, the treatments are delayed, no scans, no xrays, people are dying in a qeue for diagnose. Such a poor state for the third richest economy on the planet.

    I still cannot believe it, it is so sad to see.

    Certainly something should be done about it to put it right, if people will be in silence nothing will change!

    maria from Portsmouth

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