Comments on: Week 44: Tuesday - There Are Also The Realities Of Everyday Life

By: Jacqui Worley

Jacqui Worley — Thu, 08 Sep 2005 13:04:22 +0000

Hi Ron,
Spoke to Mairead today and mentioned that I hadn’t heard from you for ages and she explained why! Sorry to hear that you are not well and I’m glad to see that you have not lost your sense of humour! I hope that you will be able to go to Spain and get some R & R. I’m off to Cyprus on Saturday so I will be in contact after I come back.

Hope you hospital appointment goes well and your blood count improves.

Best wishes to you, Carol and your family.

Jacqui

By: Lu

Lu — Wed, 07 Sep 2005 12:11:39 +0000

Hi Ron
I am not surprised you have been feeling upset, treatment or no treatment. A couple of days ago I visited the forum and was surprised to see all that stuff going on! It all seemed to have gone a bit mad, and didn’t feel like the same place I used to visit not so long ago. The reason I have avoided other sites is because of all the exclusive banter that can go on - it can feel very unsafe at times. If some people want to do this that’s fine, but just not what I find useful in a forum. I personally am glad you’ve made those changes so that people can have the choice - I haven’t found it at all hard to navigate round, and I think you’re a star for doing any of it in the first place anyway!

Good luck for your hospital appointment, put your foot down about Epo, especially if you are thinking about continuation of treatment. It really really did make a huge difference to me tho you will need decent ferritin reserves. Ron I won’t be in touch for a while but want to wish you really well for the next few weeks. I hope you can make your decision with peace and confidence, and enjoy your holiday in Spain.
Hasta luego amigo
Lu

By: jane1962

jane1962 — Wed, 07 Sep 2005 00:05:14 +0000

Hi Ron,
Hope when you do revisit forum you will see that everyone has calmed down a lot…..sure you have a valid point about tx making everything out of perspective…..the vast majority of us seem to have no problem with the changes, and I am sure that even the few who were upset will now completely understand both the reasoning and the timing of your taking the oppertunity of utilising Ben’s skills!
The forum is a great place and I am absolutely posative that it will continue to function and develop….it is certainly big and tolerant enough a space to encompass all our personalities and opinions…..after all, thats why we keep coming back!

By: jane

jane — Tue, 06 Sep 2005 21:59:45 +0000

Hi Ron,
I am glad you made the changes. I have felt really bored and excluded recently by all the “boys stuff” and ramblings of some posters on the forum - in fact I have almost stopped visiting.
So thanks from me.
And it’s so easy to shout “victim” and “censorship”. Sometimes I think people are just working through problems about relating to authority figures/parent/doctors - and perhaps they should grow up a little.
You don’t deserve the crap, no-one else has done what you have, by creating the forum and investing the time and effort in it.
Have a great holiday and best wishes for the final haul.

By: teddy

teddy — Tue, 06 Sep 2005 21:16:37 +0000

Ron,
Sorry to hear you were upset. You don’t deserve that or Carol. Sorry if I have caused offence in any way.
I’m good at putting my foot in it!
Hope you feel well enough to enjoy your holiday and I wish you well and good health.