Archive for the ‘Journal’ Category

My Hepatitis C Treatment

Saturday, January 16th, 2010

If you’ve landed here looking for my online diary of Hepatitis C treatment, click on the links below.

You can read it in two different formats – so choose which you prefer.
1. The original Blog format – written in reverse chronological order (ie – most recent entry at the top of the computer screen)
2. Book format – where the entries are arranged in chronological order

Good news! I have now completed the 48 weeks and successfully cleared the virus. I have achieved SVR as they say in the HepC world – Sustained Viral Response. SVR means the virus is undetectable in my blood each time they test it. The testing procedures are able to detect “down to” less than 20 copies per million. Until the tests are developed to detect down to 0 copies per million no one can be labelled “cured”.

That means there is a less than 1% chance that the virus is still there lurking and hiding. But, hey, there is a 1% chance that anyone walking about in the UK has the virus without knowing it, so I reckon my chances are about the same as anyone else out there.

1. BLOG FORMAT
Click here to read the blog in original format from the beginning…
When you click on the link you will be at the first entry. Read from the bottom of the page to the top and navigate to new pages following the Next Entries < < or > > Previous Entries hyperlinks (in light blue) at the top and bottom of the current page. Then use the Archives to open each months entries, clicking < < Previous Entries and scrolling to the bottom of the page to get to the first entries of the month.

2. BOOK FORMAT
Click on the link below to download .pdf file.

My Hepatitis C Treatment Weeks 1 – 48

You will need Adobe Reader to open .pdf files. (Get a free download copy from Adobe.com)
__________________________________________________________

Testing Results

Friday, August 14th, 2009

Having had blood tests taken a few weeks ago, I then tucked the matter to the back of my mind as I knew the results of the PCR would take at least two weeks to come back to my surgery. And then I forgot all about it till recently. This morning I called my surgery for the results.

The PCR was diagnosed as “normal, no action required” – so no HepC virus. Good news.

My LFT results were all within normal ranges. I have traditionally tracked ALT which measures the inflammation of the liver. Normal range is up to 24 and mine is 17. So, my liver is not inflamed and is functioning normally. This is consistent with previous test results over the past few years. So good news there too.

Testing

Wednesday, July 8th, 2009

Only recently I have been thinking about having an annual blood test to check the virus has not returned. I have no reason to suspect it has but of course testing is the only way to know for sure. I have been ambivalent about doing an annual check as it has now been three years last October since I completed treatment. And how long do I go on checking when the results are ‘no virus’?

But I have decided to have an LFT (Liver Function Test) as I have been observing the effects of a modest consumption of wine. Carol and I went to Italy for five days and shared a bottle of white wine with our dinner, several evenings in a row. And for several weekends we have shared a bottle of wine over two nights. I describe this in detail to say that this is not great consumption for most people. And to say I do enjoy a glass of wine particularly with good food. However I began to notice a kind of distended feeling in my stomach and feeling bloated. It seems like my liver is not really metabolising the drink and my system is struggling to cope. So I decided to stop the drinking completely and soon noticed these effects disappearing. Regretfully I am learning I really can’t cope with much wine – although I cannot see me giving up the very occasional glass – I do enjoy it at the time.

So booking in for a LFT blood tests I decided to add the PCR DNR as it seems a bit irresponsible not to check on the HepC virus too. I will have the tests on my next return to London (I’m working away from London at the moment) and then await the results.

Clear of the virus but not entirely clear of it in my life

Monday, May 11th, 2009

I had a very odd experience recently – I didn’t where to put myself or what to say. That in itself is unusual for me.

I took a potential business client out to lunch. A proper business lunch – attentive waiter service, menu with the provenance of the food clearly listed, etc. When it came to discussing the wine list I pointed out to my guest that, as he had seen on my CV, I have had HepC and now try to look after my liver by drinking only occasionally. (Yes I do list HepC on my CV as an explanation for only working part-time over that period and because I insist on being upfront about it.)

He replied that he had once had a letter from the National Blood Service after giving blood to say his donation hadn’t been accepted due to hepatitis. He added this was years ago but he’d never had a blood test since then. Immediately I was thinking, I know a number of people whose HepC was diagnosed from a letter from the National Blood Service. So I hear alarm bells going off in my head. He said he wasn’t sure what type of hepatitis it was but he felt well so it must have passed.

Lots of things were going through my mind. I felt quite shocked that someone would get a letter like that and not take the advice of getting further tests. I wanted to confront and challenge that one. I also felt acutely aware that this is someone I hardly know – certainly not someone I know well enough to be challenging self-care behaviours or giving them health advice. This is a potential business client and our relationship is fairly formal.

I also thought I don’t want to be the person to tackle the very real possibility that he could be ill and not know it. That is not my place just because I’ve had the virus, done the treatment, got the t-shirt and wrote the blog. But I could not leave the matter without saying anything.

All I could muster was a rather low-key “it could be a good idea to get a blood test”. When he asked me the symptoms of HepC and I said generalised fatigue, stomach or digestive problems, feelings of malaise or unwellness were amongst a diverse range of symptoms, he nodded and said he had some of those. They had offered some counselling he recalled. He added maybe he should get a test sometime. I wanted to say, “YES, sometime this week actually would be a good idea”. But again I felt constrained that this is not my place or the sort of relationship I have with this person. But I didn’t. I just again said it would be a good idea to get a blood test.

Since then I have felt I ought to have said more. Even as I write this I can feel this sense of responsibility, knowing what I do about HepC. However, if someone does not take the advice given to them in a letter from the National Blood Service, or chooses to deny its significance, should I be pressing them, giving them more advice, penetrating their armour of denial? Is that for me to do?

Just now I have been looking at the NBS website and seen their policy guidance on confirmed positive microbiological markers such as HepC. The NBS has a responsibility to inform donors confirmed positive, to contact them by letter and to follow up non-responses through TRACELINE to establish the name of the GP and request they contact the donor. There is quite a lot of detailed procedure and protocol in place. So I can see that clearly I do not have to feel responsible – the NBS is.

I also read on their site that their positive antibody test result does not necessarily indicate continuing infection with the hepatitis C virus.

So, I don’t know what happened in the case of my lunch guest. I am pleased to realise it really is not my business – or my responsibility to confront. I hope for his sake that he is well. But I now know I don’t have to keep weighing up if I have done the right thing. And I feel relieved about that.

Once again I find this living without HepC very odd – clear of the virus but not entirely clear of it in my life.

It’s a murky realm that we’re lifting the lid on

Sunday, March 29th, 2009

The New York Times has yesterday published articles about Ghostnet – a vast electronic spying operation that has infiltrated computers and has stolen documents from hundreds of government and private offices around the world – including those of the Dalai Lama.
I quote from that article:

The researchers at the University of Toronto, had been asked by the office of the Dalai Lama, the exiled Tibetan leader whom China regularly denounces, to examine its computers for signs of malicious software, or malware.

Their sleuthing opened a window into a broader operation that, in less than two years, has infiltrated at least 1,295 computers in 103 countries, including many belonging to embassies, foreign ministries and other government offices, as well as the Dalai Lama’s Tibetan exile centers in India, Brussels, London and New York.

The researchers, who have a record of detecting computer espionage, said they believed that in addition to the spying on the Dalai Lama, the system, which they called GhostNet, was focused on the governments of South Asian and Southeast Asian countries.

The newly reported spying operation is by far the largest to come to light in terms of countries affected.
This is also believed to be the first time researchers have been able to expose the workings of a computer system used in an intrusion of this magnitude.

Still going strong, the operation continues to invade and monitor more than a dozen new computers a week, the researchers said in their report, “Tracking ‘GhostNet’: Investigating a Cyber Espionage Network.” They said they had found no evidence that United States government offices had been infiltrated, although a NATO computer was monitored by the spies for half a day and computers of the Indian Embassy in Washington were infiltrated.

Disturbing enough to hear about this type of skulduggery, it is even more disturbing to learn of the implications of the capabilities of this malware for businesses and organisations in general.

The malware is remarkable both for its sweep — in computer jargon, it has not been merely “phishing” for random consumers’ information, but “whaling” for particular important targets — and for its Big Brother-style capacities. It can, for example, turn on the camera and audio-recording functions of an infected computer, enabling monitors to see and hear what goes on in a room. The investigators say they do not know if this facet has been employed.

The researchers were able to monitor the commands given to infected computers and to see the names of documents retrieved by the spies, but in most cases the contents of the stolen files have not been determined. Working with the Tibetans, however, the researchers found that specific correspondence had been stolen and that the intruders had gained control of the electronic mail server computers of the Dalai Lama’s organization.

The electronic spy game has had at least some real-world impact, they said. For example, they said, after an e-mail invitation was sent by the Dalai Lama’s office to a foreign diplomat, the Chinese government made a call to the diplomat discouraging a visit. And a woman working for a group making Internet contacts between Tibetan exiles and Chinese citizens was stopped by Chinese intelligence officers on her way back to Tibet, shown transcripts of her online conversations and warned to stop her political activities.

The Toronto researchers said they had notified international law enforcement agencies of the spying operation, which in their view exposed basic shortcomings in the legal structure of cyberspace. The F.B.I. declined to comment on the operation.

At the same time, two computer researchers at Cambridge University in Britain who worked on the part of the investigation related to the Tibetans, are releasing an independent report. They do fault China, and they warned that other hackers could adopt the tactics used in the malware operation.

It is interesting that the Dalai Lama and his activities are of such concern that they need to be infiltrated, tracked and undermined. Clearly he is of much greater import than the dismissive statements made by the Chinese – and to some extent the British government who recently formally (and, in my opinion, shamefully) recognised the supremacy of China in Tibet.

There is no integrity in denouncing this man who espouses peaceful protest and good wishes to his fellow man by saying he incites violence and creating other fictions about him. The use of computer malware underlines this lack of integrity and adds a layer of immorality to the campaign against him.

Now the polarisation going on around His Holiness extends further into our society.

We learn that this malware can, for example, turn on the camera and audio-recording functions of an infected computer, enabling monitors to see and hear what goes on in a room.

The case in point is the Dalai Lama but obviously the implications are enormous if launched against businesses and organisations. At a time when the UK government has invested so much in creating electronic records and databases across national organisations, requiring us increasingly to make electronic payments of tax and other payments it is chilling to think about the vulnerabilities we are building into our society.

And how easy it is for immorality and illegality to infiltrate the very fabric of it – in ways which are so very insidiously unknown and mysterious to the vast majority of us.