Has it Been Five Months??

November 17th, 2008

It’s hard to believe I haven’t written a thing on this blog for five months. Five months. Do I really have that little to say? Have I really been that busy? Do I really think that little about Hepatitis C these days? Does anyone care or even notice?

Well some people have noticed. I continue to receive emails about Hepatitis C which do remind me I have had a connection with this virus. Even when I think it’s a thing of the past.

Last month I received an email – and a comment on my last blog entry, from Jana who was wanting to make contact with Daniel – who had also made a comment on my last blog entry. She hadn’t seen him for years, found his entry on my blog and asked me to forward a message with her email address to him. So HepC might have separated them – but this blog helped bring them back in contact again. Connected. I really wish them well.
:-)

And I’ve been getting other interesting messages from all over the place. Even if I don’t have much to say, there are others who still do. Here are a few.

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Near Water Again

June 22nd, 2008

I’m on another work assignment now – entirely dissimilar from the last one. Different client group and different organisational issues. And in an entirely different location. This time it’s the heart of London in a high-rise building. But it’s by water again – this time the River Thames.


This is the view from my desk. Behind the red crane is MI6 headquarters. I try peering to see what they’re up to – even their windows are very opaque and mysterious. On the other side of the MI6 building is the office of the PR people who run the NHS Hepatitis C campaign and and the FaceIt photo exhibition that many of us took part in. Wonder if the same people are involved? Hmm, can’t say I’m that curious to find out.


So I focus off into the distance and buildings like The Gherkin and, from nearby my desk, St Paul’s Cathedral



Sadly, but perhaps not surprisingly, I don’t have a view of the Thames from my desk. So I take a brief walk along the promenade outside the building – and capture these refreshing and interesting vistas.

Not Me

May 13th, 2008


Spotted on a roundabout near Vauxhall Station London

Back in the days when it did affect me, I never saw anything like this around town. So well done HepC Trust for persuading Clear Channel advertising to sponsor the message.

Beaches

May 11th, 2008


Ocean Beach San Francisco May 2007


Waikiki Beach May 2007

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Celebrating Success

March 30th, 2008

I recently received a “good news” email from Nadine Saubers. In 2005 Nadine was involved in creating and marketing two albums of Christmas Songs for dog and cat lovers – and developed the Pet Laughs web-site for them. She has just heard that two of the songs from Celebrate Catmas! and Celebrate Dogmas! have been chosen by Disney to be on the Disney compilation Christmas CD this year! As she says in her email “We’ve been working on getting an endorsement from someone with clout for a couple of years and for our purposes Disney is about as good as we can get!” And I have to agree – this is success to celebrate.

Nadine lives in California, and although we have never met, we have been in contact via internet for a few years now. Nadine had completed treatment for HepC in January 2005 but was left filling very ill and depleted after the treatment. She struggled with extreme fatigue, hypoglycaemia – just to name two things I recall her coping with. By Christmas 2006 she was beginning to feel better and had set up a website called Nadine Art, featuring a poster for Hepatitis C Awareness

By the summer of 2007 Nadine had just finished a book called “The Everything First Aid Book” when she was asked signed up to write and have published a book on fatigue – “The Complete Idiot’s Guide to Fighting Fatigue”.

Earlier this year she initiated a company called Use It Again Sam, reusable shopping bags she has designed and had made from nylon Ripstop (the same fabric used to make parachutes).

Along the way, Nadine also runs a life-coaching business and is a research assistant. She has provided services for an author and has worked on several documentaries for NHK, the Japanese Broadcasting Company. She also maintains the websites listed above and Nadine Saubers Virtual Assistant

While Nadine has chalked up an impressive list of achievements by anyone’s standards, I am just so struck how different, how positive this Nadine is compared to the one I first encountered. How much she has grown on her journey from illness to wellness. And I suspect she would say the experience of having had HepC has been a great influence in these changes.

I have encountered lots of people on my own journey with HepC, in the virtual and real world. A number of them moved away from the HepC world completely once they completed treatment and achieved PCR. And a lot remain in or hover on the edge of the HepC world still – and not just those who relapsed or were non-responders.

Many people find post- treatment symptoms like brain-fog and fatigue make the return to normality a slow and arduous journey. It is hard to stop thinking and behaving like a patient. I know. It was a struggle for me to overcome. I finally became determined to move back to what I called my “working life”, normality, not seeing myself as a patient or ex-patient. However, I see many people hanging on, seemingly unable to let go of this HepC illness.

So the point of writing about Nadine today is not just to say nice things about her. It is also to point out the possibilities and prospects of life after HepC. There are lots of places where we can hear chapter and verse of how awful it is to go through the experience of HepC and we can see how sour it has made some people. Time for other perspectives. We also need to hear about and celebrate the successes too, to flag up that there is also hope within this HepC world.

Carol, as ever the source of good ideas, has pointed out to me it would be useful and interesting to contact people who have now moved on from the HepC world and to ask them how HepC has changed their lives. So I will be writing more about other people’s experience of life after HepC and how it has impacted on them. And maybe experimenting with different media at the same time.


Like Carol and I on our recent visit to Spain, these cats seem more interested in soaking up the Spanish sunshine than anything else going on around them.